Comments on: EVENT: U.S. MDS Patient and Family Forum http://www.mdsbeacon.com/events/2009/12/18/event-u-s-mds-patient-and-family-forum/ The MDS Beacon provides extensive, up-to-date news and information about myelodysplastic syndromes. Its mission is to be the leading Internet resource for MDS patients, their families, and others interested in myelodysplastic syndromes. Tue, 07 Feb 2012 18:33:15 +0000 hourly 1 By: Julie Shilane http://www.mdsbeacon.com/events/2009/12/18/event-u-s-mds-patient-and-family-forum/comment-page-1/#comment-890 Julie Shilane Mon, 09 Nov 2009 20:54:23 +0000 http://www.mdsbeacon.com/?p=8215#comment-890 Mr. Levy, thank you for your inquiry. To register for the MDS forum in Lake Success, NY, you can call 1-800-MDS-0839 or email dmurray@mds-foundation.org. Mr. Levy, thank you for your inquiry. To register for the MDS forum in Lake Success, NY, you can call 1-800-MDS-0839 or email dmurray@mds-foundation.org.

]]> By: jacob levy http://www.mdsbeacon.com/events/2009/12/18/event-u-s-mds-patient-and-family-forum/comment-page-1/#comment-864 jacob levy Mon, 09 Nov 2009 19:21:51 +0000 http://www.mdsbeacon.com/?p=8215#comment-864 My wife was diagnosed with MDS back in Feb. 2009. She was treated with procrit 40,00 and 60,000 units, to no avail. She is now taking the revlimid 10mg capsule every other day plus blood transfusions(2 units) every two week, so far her RBC count has not been higher than 8.9 and it lasts for one week. The second week after the transfusion the RBC goes down to 7.5-7.8( she has not completed two cycles yet) She is very depressed and worried , to say the least. (she still works full time) I would like to get some comments from patients with similar condition. Also, how does one registers for the forum in lake success -long island, NY on Dec. 18 Please respond to my email address. thank you very much My wife was diagnosed with MDS back in Feb. 2009. She was treated with procrit 40,00 and 60,000 units, to no avail.
She is now taking the revlimid 10mg capsule every other day plus blood transfusions(2 units) every two week, so far her RBC count has not been higher than 8.9 and it lasts for one week. The second week after the transfusion the RBC goes down to 7.5-7.8( she has not completed two cycles yet)
She is very depressed and worried , to say the least. (she still works full time)
I would like to get some comments from patients with similar condition. Also, how does one registers for the forum in lake success -long island, NY on Dec. 18
Please respond to my email address.

thank you very much

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