AAMAC Provincial Support Groups
The Aplastic Anemia & Myelodysplasia Association of Canada volunteers with personal experience can provide support for those with MDS, aplastic anemia, and paroxysmal nocturnal hemoglobinuria. Their Medical and Scientific Advisory Committee made up of Canadian experts can refer patients to helpful resources though a network of organizations developed over more than 20 years. Contact them for information about telephone and e-mail peer-to-peer support, educational material, their quarterly newsletter, support group meetings, and educational conferences.
http://www.aamac.ca/treatmentsupport.html