Comments on: Researchers Observe High Survival Time For Myelodysplastic Syndromes Patients With Deletion 5q (ASH 2009) http://www.mdsbeacon.com/news/2010/01/08/researchers-observe-high-survival-time-for-myelodysplastic-syndromes-patients-with-deletion-5q-ash-2009/ The MDS Beacon provides extensive, up-to-date news and information about myelodysplastic syndromes. Its mission is to be the leading Internet resource for MDS patients, their families, and others interested in myelodysplastic syndromes. Fri, 10 Feb 2012 02:35:40 +0000 hourly 1 By: Biblia Kim http://www.mdsbeacon.com/news/2010/01/08/researchers-observe-high-survival-time-for-myelodysplastic-syndromes-patients-with-deletion-5q-ash-2009/comment-page-1/#comment-1969 Biblia Kim Mon, 08 Mar 2010 04:11:15 +0000 http://www.mdsbeacon.com/?p=8314#comment-1969 Dear Dr. Germing, Thank you for answering our reader’s question and for posting your reply directly on The MDS Beacon site. Your expert contribution is greatly appreciated. Best regards, Biblia Dear Dr. Germing,

Thank you for answering our reader’s question and for posting your reply directly on The MDS Beacon site. Your expert contribution is greatly appreciated.

Best regards,

Biblia

]]> By: ULrich Germing, MD http://www.mdsbeacon.com/news/2010/01/08/researchers-observe-high-survival-time-for-myelodysplastic-syndromes-patients-with-deletion-5q-ash-2009/comment-page-1/#comment-1954 ULrich Germing, MD Sun, 07 Mar 2010 10:57:35 +0000 http://www.mdsbeacon.com/?p=8314#comment-1954 Dear Darlene, yes of course you should be tested for del(5q), because if you had del(5q) not only your prognosis would be better, but also, in case of transfusion need you could be treated witg Lenalidomid, resulting in about 66% transfusion independency. Your physician should take blood (10-20ml) and send the blood to a first class cytogentic lab in order to find or exclude del(5q). If this does not work, you have to undergo a second marrow puncture kindest regards and best wishes Ulrich Prof. Dr. med. U. GErming Vice head Dept of Hematology University of Düsseldorf GErmany Dear Darlene,

yes of course you should be tested for del(5q), because if you had del(5q) not only your prognosis would be better, but also, in case of transfusion need you could be treated witg Lenalidomid, resulting in about 66% transfusion independency.

Your physician should take blood (10-20ml) and send the blood to a first class cytogentic lab in order to find or exclude del(5q). If this does not work, you have to undergo a second marrow puncture

kindest regards and best wishes
Ulrich

Prof. Dr. med. U. GErming
Vice head
Dept of Hematology
University of Düsseldorf

GErmany

]]> By: darlene parker http://www.mdsbeacon.com/news/2010/01/08/researchers-observe-high-survival-time-for-myelodysplastic-syndromes-patients-with-deletion-5q-ash-2009/comment-page-1/#comment-1403 darlene parker Sat, 09 Jan 2010 15:08:08 +0000 http://www.mdsbeacon.com/?p=8314#comment-1403 I have meylodisplasia and it progressed to RARS. Should I be tested for the del-5q mutation? I would like some time line with this illness. I have not had any transfusions. (age 66) Thank you Darlene Parker I have meylodisplasia and it progressed to RARS. Should I be tested for the del-5q mutation? I would like some time line with this illness. I have not had any transfusions. (age 66)
Thank you
Darlene Parker

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